The ABS and James Lind Alliance are working together to establish a Priority Setting Partnership (PSP) following the methods set out by the James Lind Alliance. The JLA is a non-profit-making initiative that brings patients, carers and clinicians together in PSPs. These partnerships identify and prioritise uncertainties about a particular condition or treatment that are agreed to be the most important “unanswered questions” in the specialty, and the aim of this is to ensure that the bodies who fund health research are aware of the questions that are felt to really matter to both patients and clinicians. Answering these questions through research could help with the progression of medical knowledge and benefit patients.
This partnership will expand on the ABS Gap Analysis and involves patients, carers, charities, healthcare professionals and researchers to find out what is important in breast cancer surgical research. The ABS have agreed to fund the PSP, supporting key staff and resources to ensure that the PSP will be successful.
Breast Cancer Surgery Priority Setting Partnership Second Survey
The ABS and the James Lind Alliance Breast Cancer Surgery Priority Setting Partnership recently ran a survey that asked patients, families and healthcare professionals to tell us their questions about breast cancer surgery. 260 people took part and generated a list of 59 summary questions. These were checked against the evidence base to ensure they had not already been answered. We are now asking you to take part in our second survey, and to choose the questions that you think are the most important for research to answer.
The survey is now closed. Further information will be available following the workshop.