The National Audit of Breast Cancer in Older Patients (NABCOP) is a joint project involving the Association of Breast Surgery (ABS) and the Clinical Effectiveness Unit of the Royal College of Surgeons of England. This is an HQIP sponsored audit.
You can download a copy of the NABCOP Annual Report 2018 here
You can find more information on the NABCOP website here www.nabcop.org.uk.
NABCOP Data Specification for COSD versions 6, 7 and 8 now online.
Find out more in the NABCOP Newsletter here.
You can download a copy of the NABCOP Annual Report 2017 here.
The Sloane Project is a Public Health England (PHE) funded audit of screen-detected ductal carcinoma in situ (DCIS), lobular in situ neoplasia (LISN) and atypical hyperplasias of the breast, set up in collaboration with the Association of Breast Surgery.
The main aim of the Sloane Project is to gain a greater understanding of the diagnosis, treatment and clinical outcomes of screen detected breast carcinoma in situ and atypical hyperplasia to enable patients and health care professionals to make more informed choices regarding treatment options in the future.
The first phase of the project ran from 1st April 2003 to 31st March 2012 and collected data on DCIS, LISN and ADH. The second phase commenced on 1st April 2012 with a focus on risk lesions and atypia (LISN, ADH, Pleomorphic LCIS (PLCIS), and Flat Epithelial Atypia (FEA)). Patients with DCIS are no longer accrued to the study, although we continue to collect outcome data for all Sloane Project patients entered.
All breast screening services are invited to submit their cases. All data collection forms are available on the Sloane Project website and are straightforward to complete, as in many cases the women will either have one surgical operation or will have no surgical procedure and core/mammotome only. Guidance for identifying and submitting these cases is also available on the website.
Project management and data analyses are provided by Karen Clements and Bridget Hilton at PHE Birmingham, led by Olive Kearins. The project is overseen by a steering group, made up of clinicians, academics, management staff and a patient advocate.The Chair is Prof Alastair Thompson, Olga Keith Wiess Chair of Surgery, Baylor College of Medicine, Texas/Univeristy of Dundee/Imperial College London
The audit has collected comprehensive data on the radiological and pathological features, treatment and follow-up data on over 13,000 patients since it began in April 2003 making it the largest dataset of its kind in the world. Results from the audit have already had an impact on the diagnosis and management of DCIS in the UK and internationally.
For further information about the Sloane Project please visit the website https://www.gov.uk/guidance/breast-screening-the-sloane-project or contact Karen Clements or Bridget Hilton at email@example.com.
A national audit of provision and outcomes of mastectomy and breast reconstruction surgery for women in England and Wales.
The National Mastectomy and Breast Reconstruction Audit was commissioned and funded by the Healthcare Commission to assess and improve the quality of care provided to women with breast cancer undergoing mastectomy and breast reconstruction surgery. The audit evaluated the care process and measured treatment outcomes for these women.
What were the aims of the audit?
- described provision of and access to breast reconstruction in England and Wales
- evaluated current clinical practice in mastectomy and breast reconstruction
- measured outcomes following mastectomy with or without reconstruction
- assessed the quality of information provided to women undergoing mastectomy and their satisfaction with the reconstructive choices made.
Who carried out the audit?
The audit was conducted by a team of specialist clinicians and auditors from:
- the Association of Breast Surgery (Lead Breast Surgeon - Jerome Pereira)
- the British Association of Plastic, Reconstructive and Aesthetic Surgeons (Lead Plastic Surgeon - Chris Caddy)
- the Royal College of Nursing (Lead Specialist Nurse - Carmel Sheppard)
- the National Clinical Audit Support Programme (NCASP) of The Information Centre for health and social care
- the Clinical Effectiveness Unit of The Royal College of Surgeons of England and London School of Hygiene and Tropical Medicine.
The National Mastectomy and Breast Reconstruction Audit produced 4 Annual Reports which you can view here.
The UK National Flap Registry (UKNFR) is a registry for all pedicled and free flaps in the breast, head, neck, upper and lower limb, perineum, trunk and after sarcoma resection. UKNFR has official participation from BAPRAS, BAOMS, BAHNO and the ABS.
The registry has been live for all of the UK since August 2015 and offers the 'Surgeon Dashboard' was launched in July 2017 for every user/surgeon can download various graphs (numbers, case mix, gender, age, success rate, return to theatre) for appraisal and revalidation.
Terms and Conditions, User Policy, Patient information sheet and consent form are uploaded in the documents section of UKNFR website. To visit the live registry please click here.
To download information and tips please click here.
May 2019 update:
The first UKNFR report is scheduled for publication on the 3rd December 2019. The report will have aggregate national data on all flaps without units and surgeons' names specified. It will have national averages for key performance indicators: case mix, age, demographics, flap success, unplanned return to theatre and length of stay. These will be listed broadly according to anatomically reconstructed areas: Breast, Head & Neck, Upper Limb, Lower Limb, Trunk, Perineum. Participating plastics units will be listed in the report, however specific data on each unit's performance will not be in the report.
The final cut of UKNFR data will be taken on 1st August 2019, for the period from 1st August 2016 - 31st July 2019.
UKNFR users should check their data for completion and accuracy
Anyone performing flaps for reconstruction who is not yet registered should do so and enter data retrospectively from 1st August 2016.
Latest Update (September 2018) is available here
Find the UKNFR Counts for October 2018 here
Find the UKNFR Counts for March 2019 here
The Breast Cancer Clinical Outcome Measures (BCCOM) Project aimed to audit the clinical management of symptomatic breast cancers in the United Kingdom. The information needed for the audit was obtained from existing sources such as the data currently collected by cancer registries and individual clinicians. The audit was conducted in collaboration with the UK cancer registries and 191 breast surgeons registered with the UK Association of Breast Surgery at BASO (now the Association of Breast Surgery).
Please be aware that:
- BCCOM only covered the first invasive breast tumour diagnosed in a patient in that year, so not all tumours were potentially audited
- BCCOM relied upon the goodwill/time of clinicians to complete this in their own time; response rates varied by hospital and over time
- BCCOM was not a compulsory audit and only cover ~40% of tumours diagnosed in each audited period, so the results may not be representative of the whole patient (or clinical) communities
- For these reasons alone, the results from BCCOM should not be directly compared to those of a compulsory data-driven audit like NABCOP
Below you can download copies of the All Breast Cancer Report and BCCOM booklets.